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Post by T on Feb 21, 2017 22:47:03 GMT
Hi.
I've recently been diagnosed with chronic HBV. I had no idea and I only found out as I was trying to donate blood. The docs/hospital seem quite slow at giving me a full diagnosis, I found out in November and I'm still waiting for my ultrasound appointment.
I've pretty much come to terms with it and feel okay. This site has been really helpful. I most worried about what to tell people. I'm early thirties and have an active social life. I want to stop drinking but I know my friends will question 'why' and I'd rather not tell them I have HBV. Any advice on how to handle this?
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Post by Admin on Feb 22, 2017 20:20:20 GMT
Hello there T first of all well done for studying the site and learning about HBV. It is good to know if you are active or inactive also, just knowing we have HBV is never enough. It is good to know if our liver is working fine with normal levels, if so the ultra sound is a next step. With alcohol do not do what I did, I announced to my quiz night table I had HBV and promptly found out the person sitting next to me had lost his 60 year old wife to the virus and then found no one else had a clue exactly what hbv is. So.... tell them you have had a liver test and the doctor says your drinking is harming your liver instead. It is the truth you drink and it harms your liver, people do not think HBV, people seldom know what the H B and V even stand for. Until we have learnt more about our HBV we are best advised to tell no one but the partner who has a right to know and get vaccinated, the kids can get vaccinated because vaccinated kids are safe and dad says so. But for yourself lets get the ultra sound done and the liver blood tests understood and also perhaps share your HBV actual results...Are you knowing the viral load and the e antigen status. As all this will explain if you are uninfectious or not. Most diagnosed patients seldom get ill with todays level of care. If you are in the UK doo call us on 0800 206 1899 or email me at coordinator@hepbpositive.org.uk If you are from outside the UK it is also good to advise parents and siblings as they commonly have HBV risks as well.
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Post by T on Feb 22, 2017 21:23:44 GMT
Hi.
Thanks for your advice. Great to hear from someone who has been there. I'm waiting for my blood results. I live in the UK so I'll give the hotline a call when I have all the details.
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MJD7
New Member
Married
Posts: 1
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Post by MJD7 on Jun 25, 2023 14:42:05 GMT
Hi there, I'm a hepb patient from the Philippines and I'm 49yrs old, married. I was screened test with hepatitis B last October 2022 and the result is positive. I've done hep b liver panel test and the result are the following: HBSag-reactive, Anti HBs-non reactive, HBeAg-Non-reactive, Anti HBc IgM - non-reactive, Anti-HBe-Reactive and Anti-HBc Total is Reactive. The attending physician said that I acquired it during perinatal of my mother. Furthermore, I've done following diagnostic test like HBV DNA with viral load of 48,461 IU/ml. My Liver Fibroscan result was interpreted as F4 fibrosis(Cirrhosis) and S1 steatosis and liver stiffness is 38.kPA with cap value of 236dB/M. My whole abdominal CT scan result for liver is normal parenchymal attenuation no definite solid or cystic parenchymal masses. But my ALT is elevated to 240 U/L which is not normal. I started treatment with Tenofovir Alafenamide 25mg last January 20,2023 and now on my fifth months of taking the anti-viral drug. My recent Liver Function Test result is now normal ALT 54 and HBV DNA viral load is lower to 92.52 copies /ml from 282.043copies/ml. Other test like whole abdominal ultrasound and repeat liver fibroscan is on schedule this month. As a patient with chronic hepb and cirrhotic I understand that I'm highly at risk for hepatocellular carcinoma and I'm closely monitoring my health condition especially that I'm also considered as pre-diabetic and consistently at high LDL cholesterol despite of taking statin drugs. I've change my diet following healthy food recommendations. I also do research to broaden my understanding by reading medical journal, joining doctor's forums and following social media platforms related to this deseases. I registered to this forum to share my experience on hepatitis B and hopefully get more updated information and advisory from the health professionals expert.
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